Ulcerative Colitis Update July 2018

Ulcerative Colitis Medication

As you know from previous blog posts I have Inflammatory Bowel Disease (IBD) in the form of Ulcerative Colitis, to be specific I have Ulcerative Proctitis which effects the rectum area, rather than the whole bowel. Crohns and Colitis website has an excellent explanation of Ulcerative Colitis here

I am under the care of Kettering General Hospital who have their own team of IBD Nurses, so I see a nurse every 12 months, with the option to contact them at any time if I have any concerns about my Ulcerative Colitis. I then see the Consultant every twelve months about my IBD and he also keeps on eye on my liver condition, so I see someone every 6 months. I also have a blood test every 6 months, which I do a couple of weeks prior to my appointment.

Last year my medication was increased, so I now take two Pentasa mesalazine slow release 1g tablets twice a day and during remission I should use the Pentasa mesalazine enema 1g once per week. If I get a flare up I use the enema more regularly, i.e. twice a day.

I feel my flare ups are triggered by stress and not looking after myself/when I get run down. They tend to occur more often in the winter months, which may be linked to my lower mood and that I am therefore less likely to look after myself at those times.

I struggle with the number of times and lack of control of my bowel movements, which are a challenge for me in the mornings, I have learnt to be aware that a loose stool may be a side-effect of constipation, because the only waste getting out is that, that can get around the blockage. So to watch my diet. I find it difficult to identify whether my multiple and loose bowel movements are a symptom of my IBD or IBS, the latter being aggravated by my Generalised Anxiety Disorder. I know the quantity of food I eat, defiantly has an impact and I think, that my condition(s) are aggravated by wheat and possibly milk.

Overall I feel I manage my Ulcerative Colitis okay, through medication, looking after myself, avoiding stress and accepting that I need to go to the loo 3-4 times every morning, and that my bowels settle down most days after about midday- I manage my day around this.

Here are two older blog posts about Ulcerative Colitis:

Ulcerative Colitis Flare Up and Management

Ulcerative Colitis and Anxiety

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Mental Health and Money Research

I have a lot of time for Martin Lewis of Money Savings Expert, for his advice on consumer finance and his annual debt advice booklet for people suffering with mental health illness.

He is also the face of the Money and Mental Health Policy Institute, based in London UK. I am proud to contribute to their research by being a member of the research community. This involves completing online questionnaires and surveys from time to time. There is no obligation to complete all surveys and there is also an opportunity to partake in online discussion groups.

The Money and Mental Health policy Institute have recently completed their research into how people are able to deal with financial institutions, including banks and utility companies and the impact having a mental health illness has on that. You can read the research report Access Essentials here

Find out more about the Money and Mental Health Policy Institute here and sign up to become a contributor here

 

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Reflection about losing PIP Award

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I had been receiving DLA and then PIP for the past 5 years or so, because of my mental health and Ulcerative Colitis. Following a mid award review which started in August 2017 and a medical assessment by Capita in November 2017, my PIP award ended on the 11th December 2017.

I have been reflecting on this a lot over the past 6 months. Financially the impact was significant, as it meant I also lost my Tax Credits award from the 11th December, and any day I expect a bill for £500 over payment following the year end tax credit review.

I have been lucky and been able to earn a little more money through the work I do and been helped by family.

I think the assessment found me no longer eligible, because I have moved into an acceptance phase of my illness. I accept the limitations of what I can do, because of my Anxiety and Colitis and have found a way to live which suits those conditions. Continue reading “Reflection about losing PIP Award”

Binge Eating A Letter to Myself

myanxiety binge eating

Last night you had kebab, not just any kebab, you chose the extra-large mixed kebab, with three pittas- there is a clue there, in theory to share with your wife, (but she didn’t eat much). Today you have been awake since 5am feeling bloated, nauseous and sweaty. You started going to the toilet at about 7am, wanting to rid your body of the bloated sick feeling. But now at 11am having been to the loo more than 10 times, you are in pain, your bottom is sore and bleeding, you still feel sick and bloated and in pain. If you are lucky this will ease around 1pm and you will start to feel better.

Why does this happen? Well in simple terms you have a bad relationship with food that started at secondary school around 12 years old, when you would spend lunch money on ice cream, secretly make sandwiches to take to school and beg for food from friends. From there your bad relationship with food has developed.

Continue reading “Binge Eating A Letter to Myself”

Dosette or Tablet Medication Box

Medimax Pill Box

My poor wife has to take various medication at three different times in the day. It soon became impractical and confusing to just take the tablets direct from the packet and meant there was often a conversation about whether medication had or hadn’t been taken. So we have bought a few different tablet boxes, also known as a dosette box or medication dispenser over the years.
Continue reading “Dosette or Tablet Medication Box”

How do I feel after Binge Eating

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I have been eating rubbish food all weekend. Last night I ate an extra large mixed chicken and Donna kebab and minstrels and chocolate and Pepsi Max and biscuits, having had porridge for breakfast and poached eggs for lunch

This morning:   I feel ill:

  • I feel nauseous
  • As if a heavy weight is on my stomach  and chest,
  • My throat is dry – dehydrated from all he grease & fat
  • I feel greasy / dirty,
  • I feel lethargic,
  • I have no enthusiasm to get up,
  • i am m cross with myself I am the berating myself.
  • I feel pain in lower underside on the left of my stomach my chest is tight
  • I’m having difficulty breathing.
  • I am low and down
  • My bowels feel loose, unsafe….

Why why?

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PIP Medical Assessment Outcome 2017

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I have been receiving PIP for a few years and was asked in the Summer to confirm my current health situation by submitting a medical questionnaire form back to DWP. I think I may have blogged about my quandary and in the end I confirmed that my ability to dress and bathe had improved. I then had an anxious couple of months waiting to hear further from the DWP. Then I was asked to attend a medical assessment with Capita on the 10th of November.

Continue reading “PIP Medical Assessment Outcome 2017”

Crohn’s and Colitis Awareness Week 2017

My Anxiety BeYoursELF 2017

Crohn’s and Colitis week is happening now:  1st to 7th December 2017, being promoted by wonderful charity Crohn’s & Colitis UK, to raise awareness of Inflammatory Bowel Disease (IBD), with a focus on it being a hidden illness or disability.  The charity has done some fantastic work with supermarkets nationally getting signage added or changed to disabled toilets to get the message out that not every disability is visible – so that Ulcerative Colitis sufferers like me, don’t have to worry about being challenged for using disabled toilets when we need to – because we ‘look ok’.

Continue reading “Crohn’s and Colitis Awareness Week 2017”

Reflection on my mental health

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I attended a DWP Medical Assessment with Capita in Northampton following a review for being submitted in August.

During the Assessment the assessor said that she was not there to advise but she thought I should go back and see my GP.

Having talked about my illness with the assessor I have realised that my anxiety has got worse. I can separate my mental health illness into three areas Generalised Anxiety Disorder (GAD) , Social Anxiety and Depression.

The depression will mainly be a result of the impact of GAD and social Anxiety
Social anxiety is relatively easy to explain: I have suffered with social anxiety most of my adult life, I feel uncomfortable in groups and crowds and don’t find conversation easy, unless with immediate close family members. This has now grown to mean I avoid all social events and a gatherings, I am scared to answer the telephone

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