Ulcerative Colitis Update July 2018

Ulcerative Colitis Medication

As you know from previous blog posts I have Inflammatory Bowel Disease (IBD) in the form of Ulcerative Colitis, to be specific I have Ulcerative Proctitis which effects the rectum area, rather than the whole bowel. Crohns and Colitis website has an excellent explanation of Ulcerative Colitis here

I am under the care of Kettering General Hospital who have their own team of IBD Nurses, so I see a nurse every 12 months, with the option to contact them at any time if I have any concerns about my Ulcerative Colitis. I then see the Consultant every twelve months about my IBD and he also keeps on eye on my liver condition, so I see someone every 6 months. I also have a blood test every 6 months, which I do a couple of weeks prior to my appointment.

Last year my medication was increased, so I now take two Pentasa mesalazine slow release 1g tablets twice a day and during remission I should use the Pentasa mesalazine enema 1g once per week. If I get a flare up I use the enema more regularly, i.e. twice a day.

I feel my flare ups are triggered by stress and not looking after myself/when I get run down. They tend to occur more often in the winter months, which may be linked to my lower mood and that I am therefore less likely to look after myself at those times.

I struggle with the number of times and lack of control of my bowel movements, which are a challenge for me in the mornings, I have learnt to be aware that a loose stool may be a side-effect of constipation, because the only waste getting out is that, that can get around the blockage. So to watch my diet. I find it difficult to identify whether my multiple and loose bowel movements are a symptom of my IBD or IBS, the latter being aggravated by my Generalised Anxiety Disorder. I know the quantity of food I eat, defiantly has an impact and I think, that my condition(s) are aggravated by wheat and possibly milk.

Overall I feel I manage my Ulcerative Colitis okay, through medication, looking after myself, avoiding stress and accepting that I need to go to the loo 3-4 times every morning, and that my bowels settle down most days after about midday- I manage my day around this.

Here are two older blog posts about Ulcerative Colitis:

Ulcerative Colitis Flare Up and Management

Ulcerative Colitis and Anxiety

MyAnxiety

Missed dose of Pregabalin

Pregabalin missed dose

Occasionally I miss a dose of Pregabalin, my mental health medication for my anxiety. I take 300mg of Pregabalin  (Lyrica) twice a day and have been for about 18 months now. Saturday night I fell asleep early and forget to take my medication. Sunday I felt, well all I can really come up with is odd. I was more touchy and short tempered – sorry family. But what I really noticed was that I was so itchy.

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My Anxiety – A New Year 2016

MyAnxiety Goals 2016

Well the start of a new year (2016) deserves a blog post. The evidence is here to show that I had over done it towards the end of last year – I have had flu for the past 10 days and currently have a bad chest, don’t want to say chest infection. So if I didn’t already know it , the flu confirmed that I had done to much for me, which triggered my dark thoughts and difficult period in November and early December.

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Duloxetine / Cymbalta Withdrawal Symptoms SNRI Discontinuation Syndrome

My Anxiety Blog Post

I don’t know whether I am making a big mistake but I am trying to come off Duloxetine (Cymbalta). I have not taken Duloxetine for 5 days now, having slowly reduced my dosage over three weeks

Very difficult to explain, but got regular sounds in my head, like a camera shutter and sort of pressure noise when I move, extremely tired / exhausted, hard to move, limbs heavy, extremely irritable/nasty, dizzy/faint, nausea, emotional, increased nightmares, increased thoughts of self harm

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