Ulcerative Colitis Update July 2018

Ulcerative Colitis Medication

As you know from previous blog posts I have Inflammatory Bowel Disease (IBD) in the form of Ulcerative Colitis, to be specific I have Ulcerative Proctitis which effects the rectum area, rather than the whole bowel. Crohns and Colitis website has an excellent explanation of Ulcerative Colitis here

I am under the care of Kettering General Hospital who have their own team of IBD Nurses, so I see a nurse every 12 months, with the option to contact them at any time if I have any concerns about my Ulcerative Colitis. I then see the Consultant every twelve months about my IBD and he also keeps on eye on my liver condition, so I see someone every 6 months. I also have a blood test every 6 months, which I do a couple of weeks prior to my appointment.

Last year my medication was increased, so I now take two Pentasa mesalazine slow release 1g tablets twice a day and during remission I should use the Pentasa mesalazine enema 1g once per week. If I get a flare up I use the enema more regularly, i.e. twice a day.

I feel my flare ups are triggered by stress and not looking after myself/when I get run down. They tend to occur more often in the winter months, which may be linked to my lower mood and that I am therefore less likely to look after myself at those times.

I struggle with the number of times and lack of control of my bowel movements, which are a challenge for me in the mornings, I have learnt to be aware that a loose stool may be a side-effect of constipation, because the only waste getting out is that, that can get around the blockage. So to watch my diet. I find it difficult to identify whether my multiple and loose bowel movements are a symptom of my IBD or IBS, the latter being aggravated by my Generalised Anxiety Disorder. I know the quantity of food I eat, defiantly has an impact and I think, that my condition(s) are aggravated by wheat and possibly milk.

Overall I feel I manage my Ulcerative Colitis okay, through medication, looking after myself, avoiding stress and accepting that I need to go to the loo 3-4 times every morning, and that my bowels settle down most days after about midday- I manage my day around this.

Here are two older blog posts about Ulcerative Colitis:

Ulcerative Colitis Flare Up and Management

Ulcerative Colitis and Anxiety

MyAnxiety

Dosette or Tablet Medication Box

Medimax Pill Box

My poor wife has to take various medication at three different times in the day. It soon became impractical and confusing to just take the tablets direct from the packet and meant there was often a conversation about whether medication had or hadn’t been taken. So we have bought a few different tablet boxes, also known as a dosette box or medication dispenser over the years.
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Missed dose of Pregabalin

Pregabalin missed dose

Occasionally I miss a dose of Pregabalin, my mental health medication for my anxiety. I take 300mg of Pregabalin  (Lyrica) twice a day and have been for about 18 months now. Saturday night I fell asleep early and forget to take my medication. Sunday I felt, well all I can really come up with is odd. I was more touchy and short tempered – sorry family. But what I really noticed was that I was so itchy.

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My Anxiety – A New Year 2016

MyAnxiety Goals 2016

Well the start of a new year (2016) deserves a blog post. The evidence is here to show that I had over done it towards the end of last year – I have had flu for the past 10 days and currently have a bad chest, don’t want to say chest infection. So if I didn’t already know it , the flu confirmed that I had done to much for me, which triggered my dark thoughts and difficult period in November and early December.

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My Anxiety Medication Review 2015

I have managed to make an appointment with my GP for this afternoon and it is the doctor that we usually see for my wife, so she has a good idea of what Is going on.

I think it is time to review my medication, so I have been going through my old MyAnxiety blog posts to see what I have been prescribed over the past 5 years. From what I can piece together I started on Citalopram, followed by Seroquel, then Duloxtine, being increased to 90mg a day, then Pregablin and Trazadone. But I found the side effects of Trazodone difficult, so ended up on 150mg Pregabalin twice a day. Which must have been for the past 2 years now. From my posts I read that I found the Trazadone good for my mind but not my body (aches) so came off it. Interestingly enough I would now say I would rather risk the aches to see how I get on with the medication as I seemed to find it helpful for my mental health.

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Visits to GP, Psychiatrist & Gastroentroligst

My Anxiety Blog Post

Wow, it has been a month and quite a bit has happened.

A month ago, I blogged that I recognised I was stuck in a cycle with anxiety feeding IBS feeding anxiety, which was at the least hindering my recovery. So I have had a string of appointments over the past month, which included, GP, Psychiatrist, Gastroenterologist, and an Endoscopy.
So, to start, an anxious visit to the GP: who as usual seemed to lack empathy. I explained my bowel symptoms and link to anxiety. He concluded that I displayed the symptoms of Irritable Bowel Syndrome and suggested I discuss it more at my next Gastroenterologist appointment.

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